His name is Battle. View a list of current clinical trials, many made possible by Foundation support, Download The Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) has announced an investment of up to $7.5 million to advance the potential therapy into and through a Phase II clinical trial. Oct 21, 2020 Keep track of the events you’re passionate about with this 2021 health awareness calendar. Eye On the Cure Research News. Eye On the Cure Research News. Often diagnosed in childhood or adolescence, retinitis pigmentosa (RP) is an inherited retinal disease causing progressive loss of night and peripheral vision. Feb 6, 2020 Eye On the Cure Research News, University of Pennsylvania investigators studied retinas of patients and canines with retinitis pigmentosa caused by mild mutations in RHO, Jul 27, 2020 Eye On the Cure Research News. EIN 23-7135845. For the latest research advances for RP, refer to the Foundation publication Retinitis Pigmentosa: Research Advances. The Foundation Fighting Blindness is pleased to provide an audio recording and full transcripts of the Insights Forum, our quarterly conference call providing updates to the inherited retinal disease community. Because they have a healthy version of the gene on their other X chromosome, carrier females are less frequently affected by X-linked diseases. May 1, 2019 While a therapy for adRP will not emerge from the clinical trial, study investigators advanced development of a new outcome measure known as EZ Area to quickly and accurately evaluate potential therapies for RP in human studies. Jenny wants to spread awareness of what having a visual impairment really means to her and others affected by retinal degenerative diseases. Mar 20, 2017 The retina is a thin piece of tissue lining the back of the eye. Beacon Stories, Mar 22, 2013 Join the fight and help us accelerate our mission. Eye On the Cure Research News. Beacon Stories. May 14, 2021 “The cause makes it easier. The Foundation Fighting Blindness has taken the translational challenge head on by investing more than $75 million in therapy-development projects with strong clinical-trial potential through its Translational Research Acceleration Program (TRAP), which includes Gund-Harrington Scholar Awards. In her own words, Jenny shares her experience with being diagnosed with RP and her journey to accepting it with hopefulness. Beacon Stories. (800) 683-5555, Donations can be mailed directly to: Beacon Stories. What You Should Know About Retinitis Pigmentosa Infographic - 8.5x11, Join the fight and help us accelerate our mission, Read the Most Recent Research on Retinitis Pigmentosa, Jan 29, 2021 Throughout the 1990s, Erin was featured in several Foundation Fighting Blindness campaigns to raise funds for retinal research. Eye On the Cure Research News, Gene therapy delivered by intravitreal injection, Jul 30, 2020 One of the hot topics at ARVO this year is a rapidly advancing gene-therapy approach called clustered regularly interspaced short palindromic repeats, or CRISPR. Jul 27, 2018 Beacon Stories. Eye On the Cure Research News. Jan 9, 2018 More information on managing RP is in the Newly Diagnosed section of this Web site. The Foundation Fighting Blindness is a qualified 501(c)(3) non-profit organization and all donations are tax deductible. Mar 20, 2014 The MeiraGTx gene therapy involves injection of healthy copies of RPGR underneath the retina. Press Releases, New grants include development of CRISPR/Cas9 gene-editing treatments, new disease models, and a retinal regeneration therapy, Aug 4, 2020 Eye On the Cure Research News. Without predicting the future, we will unpack what we believe will be key to lean on in order to (re)connect efficiently with people on social media in 2021. Beacon Stories. The Foundation in the News. May 9, 2019 Foundation News. Eye On the Cure Research News. Press Releases, Bill Introduced in U.S. House Would Speed Up Cures for Blindness, Jun 8, 2018 Eye On the Cure Research News. The mutated gene gives the wrong instructions to photoreceptor cells, telling them to make an incorrect protein or too little or too much protein. Press Releases. Science Education. Eye On the Cure Research News, Projects target a variety of conditions including: age-related macular degeneration, Stargardt disease, retinitis pigmentosa, and Usher syndrome type 3A, Mar 30, 2021 By changing the identity of cells in the retina–namely rods–researchers may someday be able to slow or halt vision loss for those with retinitis pigmentosa (RP) and other related conditions. Jun 26, 2014 Jun 1, 2017 May 10, 2013 Eye On the Cure Research News. The French bioelectronics company Pixium Vision has reported that its PRIMA bionic vision system has restored some central vision in patients with advanced dry age-related macular degeneration (AMD) participating in a clinical feasibility trial. Eye On the Cure Research News. National Chapter Vision Webinar: Clinical Trials. A discussion of strategies concerning the development of autosomal dominant disease therapies at the Translational Research Acceleration Program (TRAP) in November 2013. Eye On the Cure Research News. And despite being diagnosed with retinitis pigmentosa at the age of 15, she recently began an intimate company, Watson & Wilma. Eye On the Cure Research News. The award is given to new, innovative companies in France competing in a national contest. Eye On the Cure Research News, Emerging treatment designed to preserve vision for people with RP and related conditions, Feb 27, 2020 For those of us supporting the drive for vision-saving treatments and cures, he’s exactly the type of person we want on our team. Improved outcome measures will make clinical trials for degenerative retinal diseases — including age-related macular degeneration (AMD), the world’s leading cause of blindness in seniors, and inherited retinal conditions such as RP and Stargardt disease — less expensive to conduct and able to deliver more precise results. Dr. Berson dedicated himself to clinical care and vision-saving research for people with inherited retinal diseases for five decades. Jul 25, 2017 DIY Campaign Success Stories. The Foundation Fighting Blindness is pleased to provide an audio recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the inherited retinal disease community. The discovery can help genetic experts diagnose more patients with adRP, and it gives researchers a target for developing potential therapies. (To close alert window, please click on the X at the top right corner or press escape on your keyboard.). The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. May 7, 2013 George was well-known in his community for his integrity and dedication to helping everyone around him. “It comes naturally to me,” he says of his ability to mix it up with people. Jun 12, 2013 Author Shawn Maloney describes his journey with RP. A Foundation-funded research group is developing a gene therapy that revives degenerating cones, enabling them to regain their ability to respond to light and provide vision. Eye On the Cure Research News. An estimated 100,000 people in the U.S. have RP, mainly caused by mutations (variations) in a single gene inherited from one or both parents. Eye On the Cure Research News, AGTC used Foundation’s My Retina Tracker registry to recruit patients for trials, Aug 14, 2019 Jan 17, 2018 Mutations in dozens of genes have been linked to RP. There should be preclinical and clinical trial data published in a peer-reviewed journal on research for the treatment. Hannah has always had dreams of starting her own fashion line. A patient with an accurate diagnosis is in a better position to understand which emerging treatment approaches and clinical trials are most appropriate for them. Night blindness is one of the earliest and most frequent symptoms of RP. Jan 10, 2020 October 2021 Monthly, Weekly and Daily Validated Holidays, Calendar, and Observances. Eye On the Cure Research News. Eye On the Cure Research News, “…participation in a study for an emerging therapy that is not regulated by the FDA or another well-recognized regulatory agency like the European Medicines Agency in Europe, is fraught with dangers and can lead to unexpected serious consequences.”, Feb 17, 2017 The trial is one of the first-ever for a stem-cell-derived therapy for RP. Feb 14, 2020 FFB’s own Dr. Steve Rose, chief scientific officer, reviews our commitment to funding and exploring CRISPR/Cas9 gene editing for inherited retinal disease. Eye On the Cure Research News, Dual-vector delivery system designed to deliver the large ABCA4 gene, Oct 18, 2019 Understanding the pathways of the retinal neural network — and how they are rewired with aging and disease — is helpful in trying to save and restore vision. Jun 26, 2015 At VISIONS 2016, FFB’s national conference, the Foundation honored him with its Ed Gollob Board of Directors Award for breakthrough research conducted within the past year. (800) 683-5555, Donations can be mailed directly to: Allen has always wanted to be known as an artist, first and foremost. Acupuncture definitely has potential benefits, and the breadth of those is being aggressively explored. Many people with RP are legally blind by age 40, with a central visual field of less than 20 degrees in diameter. Oct 1, 2019 The high-tech, vision-restoring system interfaces with the visual cortex, the back of the brain where visual input is processed to create the images we see. Mar 19, 2012 Retinal Disease Research Advances. Aug 2, 2016 Subretinal injection is the most common form of delivery for gene therapies currently in clinical trials. Beacon Stories, American Banker dubbed her as “the sharpest mind analyzing banking policy today – maybe ever.”, Mar 22, 2021 It also helps with attaining an accurate diagnosis. What You Should Know About Retinitis Pigmentosa Infographic - 11x17, What You Should Know About Retinitis Pigmentosa Infographic - 8.5x11, Better Business Bureau Accredited Charity, Accessibility Statement, Tips & Guidelines, Preclinical and Translational Research Webinar Series, Virtual Workshop on Inflammation in Viral Gene Therapy of the Retina, Renowned Pioneers in Ophthalmology Join SparingVision’s Scientific Advisory Board, Inherited Retinal Diseases Cost the US and Canadian Economies up to $33 Billion Annually, AGTC Joins the My Retina Tracker® Program as a New Scientific Collaborator, Foundation Fighting Blindness To Jointly Host Online Continuing Medical Education (CME, COPE) Webinar, Foundation Fighting Blindness Commits $6.5 Million for New Retinal Disease Research Grants, Foundation Insights Forum – July 30, 2020, Unstoppable: With Her “Trusty Guide Shiloh” By Her Side, Janni Lehrer-Stein Travels the World and Advocates for Disability Rights, Foundation Insights Forum – January 31, 2020, ProQR Therapeutics Teams Up with the Foundation Fighting Blindness and Blueprint Genetics to Support the My Retina Tracker® Program for People Living with Inherited Retinal Diseases, Foundation Fighting Blindness Launches Natural History Study for People with RP Caused by EYS Gene Mutations, Foundation Insights Forum – October 30, 2019, Blueprint Genetics, InformedDNA and the Foundation Fighting Blindness launch an open access program for patients with inherited retinal disease in the United States, Tackling the Next Gene Therapy Challenge: Autosomal Dominant Diseases, Foundation Fighting Blindness Urges Congress to Pass ‘Eye-Bonds’ Legislation, Foundation Fighting Blindness and CheckedUp® Partner to Educate Retinal-Disease Patients About Research, Resources, and Emerging Therapies During Doctor Visits, A Retinal Research Nonprofit Paves the Way for Commercializing Gene Therapies, Biogen’s Phase 2/3 Clinical Trial for XLRP Gene Therapy Doesn’t Meet Primary Endpoint, AGTC Continues to Report Encouraging Data from its Phase 1/2 XLRP Gene Therapy Clinical Trial, ARVO 2021 Highlight: CRISPR/Cas9 Therapy Emerging for Dominant RP Caused by RP1 Mutations, ARVO 2021 Highlight: Update on Clinical Trial of jCyte’s Cellular Therapy for RP, SparingVision to Acquire Therapy for Resurrecting Dormant Cones for Vision Restoration, Foundation Invests $5.5 Million in Seven New Translational Research Projects, Bionic Sight’s Optogenetic Therapy Enables Blind Patients to Detect Light and Motion in Early Trial, AGTC Announces Results for Achromatopsia Gene Therapy Clinical Trials, SparingVision Raises €44.5 Million for Gene-Independent RP Therapy, RP Treatment Derived from Induced Pluripotent Stem Cells Advances into Clinical Trial, 4D Molecular Therapeutics Launches Phase 1 Clinical Trial for Choroideremia Gene Therapy, Researchers Identify Regions in the Retina to Target Therapies for Certain RP Patients, jCyte Reports Promising Results for Phase 2b Clinical Trial of its Cellular Therapy for RP, AGTC Planning Phase 2/3 Clinical Trial for XLRP Gene Therapy, Biogen Entering into Licensing Agreement with Mass Eye and Ear to Develop PRPF31 Gene Therapy, Bionic Sight Doses First Patient in Clinical Trial for Optogenetic Therapy, Nacuity’s Emerging Anti-Oxidative Therapy Moves into Clinical Trial, jCyte Enters into Licensing Agreement with Santen Pharmaceutical for Cell Therapy, Researchers Report Six-Month Results from Biogen-Sponsored XLRP Gene Therapy Clinical Trial, Genetic Testing for Inherited Retinal Diseases through the Foundation’s Open Access Program, AGTC Reports Positive Six-Month Results for XLRP Phase 1/2 Gene Therapy Trial, First Patient Receives ProQR’s AON Therapy in Clinical Trial for RP Caused by RHO-P23H Mutation, FDA Authorizes Stem Cell Clinical Trial for RP in Los Angeles, AGTC Announces Development of Stargardt Disease Gene Therapy, ReNeuron Reports Interim Results for Eight Patients with RP in Phase 2a Trial for Stem Cell Therapy, AGTC Reports Promising Interim Results for XLRP and Achromatopsia Gene Therapy Trials, ProQR Receives Authorization to Begin Clinical Trial for Autosomal Dominant Retinitis Pigmentosa Treatment, SparingVision Gets EU Funding Boost for Development of Cross-Cutting Gene Therapy, The Retina is a Proving Ground for a Broad Range of Neurological Therapies, Dr. Don Zack Honored for Research Contributions by ARVO and the Foundation Fighting Blindness, Eye Bonds Re-Introduced to New Congress: Potentially $1 Billion in Government-Backed Funding for Eye Research, ARVO 2019: Emerging Drug for RP Evaluated in Safety & Tolerability Study, First Patient Receives ProQR’s Emerging USH2A Therapy in Clinical Trial, Encouraging Vision Improvements Reported in ReNeuron's Cell-Therapy Clinical Trial, The Foundation Receives a $100,000 Research Grant from Sofia Sees Hope, Pixium's PRIMA Bionic Vision System Restores Central Vision in Dry AMD Clinical Trial, ProQR Receives FDA Authorization to Launch Clinical Trial for USH2A Therapy, Foundation Invests $2.5 Million in Search for Elusive Retinal Disease Genes and Mutations, FFB Congratulates RPE65 Gene Therapy Researchers for Champalimaud Award, Ophthotech is Advancing an Impressive Portfolio of Cutting-Edge Therapies for Retinal Diseases, FFB Provides Four Career Development Awards to Up-and-Coming Clinical Researchers, FFB Funding More than $2 Million in New Research, Retinal Regeneration: Releasing Your Inner Salamander, French Gene Therapy Company Advancing Three Programs for Retinal Diseases, ARVO 2018: Dr. Henry Klassen Provides Update on jCyte Stem Cell Trials, ARVO 2018: Dr. Steve Rose Reports on CRISPR/Cas9 for Inherited Retinal Diseases, ARVO 2018: World's Largest Show and Tell for Innovations in Eye Research, Study Suggests Vitamin A May Benefit Children with RP, FFB-CRI Investing $7.5 Million in Emerging Therapy for USH2A.
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